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stickler_syndrome [2026/02/02 19:22] – created Scott Larsonstickler_syndrome [2026/02/02 19:37] (current) Scott Larson
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 ====== Stickler Syndrome ====== ====== Stickler Syndrome ======
-FIXME+====Main Features==== 
 +  *  Connective tissue disorder with ocular, craniofacial, auditory and skeletal manifestation 
 +====Eye Findings==== 
 +    * High myopia (< -3 D)  
 +    * Vitreous 
 +      * Type 1- membranous with persistent vestigial gel in the retrolental spaces bordered by a folded membrane 
 +      * Type 2- "beaded" vitreous with sparce irregularly thickened bundles  
 +    * Retinal detachment 45-60% 
 +      * Prophylactic laser retinopexy 
 +    * Foveal hypoplasia 82% 
 +    * Cataracts 35-60% 
 +    * Glaucoma 10% 
 +    * Congenital megalophthalmos  
 +====Other Findings==== 
 +  * Craniofacial 
 +    * midface retrusion with underdeveloped maxilla and nasal bridge 
 +    * Micrognathia 
 +    * Cleft palate  
 +    * Pierre Robin sequence (micrognathia, glossoptosis, cleft palate) 25% 
 +  * Hearing loss 50-60% 
 +    * sensineural  
 +    * conductive from recurrent ear infections and/or ossicular defects 
 +    * Mixed  
 +    * COL11A1- moderate to severe hearing loss in all frequencies 
 +    * COL2A1- milder high-frequency loss.  
 +  * Skeletal  
 +    * Joint hypermobility in childhood 
 +    * Early-onset osteoarthritis (age 30-40's) 
 +    * Sponidyloepiphyseal dysplasia 
 +    * scoliosis  
 +    * kyphos  
 +    * platyspondyly  
 +====Etiology==== 
 +  * Mutation of collagen genes 
 +    * COL2A1 and COL11A1 
 +    * COL2A1, COL11A1, or COL11A2 or biallelic pathogenic variants in COL9A1, COL9A2, or COL9A3 
 +====Resources==== 
 +  * [[https://www.ncbi.nlm.nih.gov/books/NBK1302/|Stickler Syndrome in GeneReviews]] 
 +  * [[https://pubmed.ncbi.nlm.nih.gov/28283280/|Foveal Hypoplasia in Patients with Stickler Syndrome. Matsushita I, et al. Ophthalmology. 2017;124(6):896-902]]
  
 +{{tag>syndrome}}